Events
Patient meetings, investigator meetings, workshops and educational programs.
View events →Aid Through Advocacy
Hope, expertise and action for the TMA community.
Patients, families, clinicians and researchers belong in the same conversation. USTMA connects people to practical help today while building better TMA care for tomorrow.
You are not navigating TMA alone.Community, specialist expertise and research—connected.
Start with you
What brings you here today?
Choose the path that fits. We’ll bring the most useful USTMA resources forward.
For patients & caregivers
Answers, people and next steps.
Learn about TMA in understandable language, find experienced care, connect with another patient and explore research.
For clinicians
Rapid access to TMA expertise.
Move from suspicion to action with clinical guidance, ADAMTS13 testing support and specialist consultation.
For researchers
Connect to a trial-ready TMA network.
Explore active studies, multicenter infrastructure, investigator opportunities and USTMA research funding.
Built around real needs
Start with the next thing you need.
Use these cards as editable shortcuts to the parts of USTMA people need most often.
Newly diagnosed?
Understand the basics, find experienced care, and connect with someone who understands TMA.
Start here →Participate in research
See current opportunities in patient-friendly language and learn what participation can involve.
Explore research →Investigator Hub
Consortium participation, study activation, P200 resources, and funding in one place.
For investigators →Find TMA care
Search physicians and centers by location and expertise.
Find care →Patient stories
Make lived experience visible through a permission-based story library.
Read stories →Get involved
Connect, participate, share, gather, advance research, or support the mission.
Find your place →Research in motion
A registry that makes the scale of collaboration visible.
P200 connects longitudinal clinical information across the USTMA network.
P200 registry snapshot
Research powered by a connected TMA community.
P200 brings longitudinal clinical information together across the USTMA network so investigators can ask better questions and build better studies.
323Participants enrolled
353Acute iTTP episodes captured
19Participating centers
276Participants with ADAMTS13 data
Current snapshot from the supplied USTMA-P200 registry dashboard.Aggregated, de-identified data. Counts may be suppressed when needed to protect participant confidentiality.
Explore the USTMA network
People, places, meetings and evidence—connected.
See where USTMA research happens, who is involved, how the community gathers, and what the network is publishing.
Sites
Active P200 centers and USTMA network sites.
Explore sites →People
Investigators, clinicians, staff, advisors and community leaders.
Meet the network →Publications
Registry papers, USTMA-supported research, abstracts and member scholarship.
Browse publications →
Personal by design
Rare disease care starts with human connection.
Connect people to peer support, specialist expertise, practical resources and research opportunities.
1
Connect
Peer support and specialist relationships.
2
Act
Fast pathways to testing, consultation and resources.
3
Learn
Clinical guidance and understandable patient education.
4
Advance
Research participation and a multicenter learning network.
Community makes rare disease less rare
Stories, meetings, and opportunities to take part.
Highlight current stories, events, research participation and ways to get involved.
Need a person?
There are people behind every USTMA resource.
Patients can connect with lived-experience support. Clinicians can reach TMA expertise. Researchers can connect with the consortium.